Tuesday, 17 May 2011

autism spectrum disorder

My father always blamed it on an unacknowledged accident at a nuclear plant in Wales. He didn’t make a big deal about it, just occasionally muttered his suspicions into his pint.

He was referring to the upsurge in Down Syndrome births along the Irish coastline in the early 1960’s – my sister, Anne, among them.

All water under the bridge now, both father and daughter have passed on, but I was reminded of his suspicion recently when learning that the incidence of Autism Spectrum Disorder (ASD) in the US population is now at a rate of 1 in 110.

As some of you know only too well, when you grow up in a house with a special needs child you become sensitive
to anything of that nature; add that to the fact that some years back a friend’s daughter was diagnosed with autism.

Anyway, it’s a rare person nowadays who doesn’t know, or know of, someone with the condition.

My sister’s Down Syndrome changed the whole dynamics of our family life – my mother’s ongoing fear was that Anne would outlive her, then what?

But at least we all understood exactly what had caused her condition: she had been born with one chromosome too many.

While genetics and heritability appear to be the main causes for autism no one really knows the reason for the recent upsurge. Better testing, of course, has added to the numbers. And for a while there was speculation that the rise might be due to childhood inoculation against measles, mumps and rubella, but that seems to have been ruled out, although many still cite it as a possible cause.

Each case is different, ranging all the way from full-blown intellectual disablement to far milder forms often manifesting as behavioral rigidity or difficulty in dealing with social situations.

That being said, the most alarming feature is autism’s rising prevalence, up from 0.6% in the population in the US in 2007 to 0.9% in 2010. Only last week an exhaustive survey from a city in South Korea placed the figure at a staggering 2.6% of all children from 7 to 12.

Many fear that the environment may be suspect for the upsurge, and this at a time when various politicians would like to eviscerate the Environmental Protection Agency (EPA). Clean air, unfortunately, is not a given, and in our profit driven world this is one agency in need of more financing rather than less.

Some people worry that the food chain might be compromised and pesticides may be to blame.

Could our over-medicated society be at fault? I don’t know but take a look in your bathroom closet - pills for this, tablets for that. Doctors will now routinely write a prescription for Lipitor rather than tell you to wise up and stop eating the greasy foods that are killing you.

Have we in some way, shape or form managed to bring the heartbreak of autism on ourselves?

While every case is indeed different, you see the same strain in each family member’s eyes. Many are overwhelmed by the problems of delivering adequate care and education. At least last year’s Health Care Reform Act will help resolve some of the health insurance issues.

At the moment there is no cure, only treatment that is costly and time consuming; as a society we are in no way prepared for the increasing incidence that shows no sign of abating.

Nonetheless, there are many wonderful people working in the field both trying to identify the causes and dealing with the consequences of the condition. Hats off to them!

For the rest of us it’s time we faced up to the fact that we may share responsibility for this upsurge in autism. The answers may be a long time in coming but for the sake of these children and their families it’s important that we begin to ask the questions.

1 comment:

  1. Larry,

    Thank you for your thoughts on autism. My daughter, Deirdre, is a beautiful 14 year old who understands but is unable to speak. it is so hard to understand why. Her passion is music. I will have to set up a Black47 playlist for her!
    - Tim D


We welcome short comments on Belfast Media Group blog postings but you should be aware that, since we've put our names to our articles, we encourage you to do so also. Preference in publication will be given to those who provide an authenticated full name — as is already the case in our newspapers. Comments should be short and relate to the subject matter and, of course, shouldn't be libelous. And remember, if you find that there isn't enough space on our blogs for your views, you can always start your own. There are over two million blogs out there, another one can only benefit the blogosphere.